Last week I visited Jane again in Nairobi. Jane has founded “Positive Exposure Kenya”, a NGO that cares about people with albinism (PwA) and inclusion. I visited her together with my Social worker from Western Kenya who also engages a lot for PwAs in Webuye. Together, we try to make the impact bigger, to build…
Tag: albinism
Changing perceptions and more skills for PwAs – on health and farming
During a farmers’ training in West Kenya people discussed on the stigma and discrimination from People with albinism (PWAs) point of view. Changing perspectives is key Changing perspective helps to create more understanding for people who seems to be different. The more visible the differences are the more difficult it becomes to be seen as…
Human rights starts on the ground – People with albinism meet farmers
It’s always on the ground, in the reality outside offices where change starts or not. When messages change ways of thinking, perceptions and, most of all, behaviors. When information and change goes beyond sectors and is not clear only to people who deal with it on a daily basis. When it reaches the ground. When…
Yes, we can make more health happen – and more hope for people with albinism
Thanks to all our colleagues at Boehringer Ingelheim!!! With a Making More Health donation of our employees we can make the next steps happen! Directly, short term and with a huge impact for some people with albinism in need! The first big step for people with albinism is ongoing What has happened? Already two weeks…
News from our Engagement for people with albinism
Sometimes change happens slowly, sometimes it can just take a few days. But always it depends on people who decide to make a difference. Thanks to my colleagues at Boehringer Ingelheim and the money they donated. And thanks to Chris, our social worker and Making More Health partner on the ground. For sure, we cannot…
First steps to support people with Albinism in Webuye
It all began a few years ago when I met Jane Waithera, a remarkable Kenyan woman with albinism who leads Positive Exposure, an NGO dedicated to supporting People with Albinism (PwAs). Through her, I learned about the incredible—and often heartbreaking—challenges faced by people with albinism in Kenya. Many live in deep poverty, excluded from society,…
Better life for people with albinism – human rights, community, health and a call to action
“I met my wife six years ago. Two years ago we married and got our child. A child with albinism”, tells me the Kenyan father during a tea break. “We were shocked. We did not even know very well what that would mean”, he adds while he looks with a bright smile at his child….
Make the world a better one for people with albinism.
Looking forward to an exciting event today: Making More Health and Jane Waithera and her team are launching albinism & I in Nairobi – an awareness raising website with a lot of information. We will have a lot of discussions with people ( people with albinism, parents, HCPs) on what they need and how to…
A day for people with albinism and without – because inclusion is key
On Friday this week we will launch Be in – Be out, a mobile website for people with albinism and all those being close to them. The launch day takes place in Nairobi, Kenya and is run together with the team from Positive Exposure. Be in – be you is an information source for people…
Albinism in Kenya – people like you and me
What would you do if your child is born with Albinism? Would you abandon him or her? Read more about the difficult experiences of Yvonne Marando in our latest blog articles here. I have good friends who are albinos. And do you know what? They are just like you and me. A special hug to…
Go Kenya, go future! 